hometagsloginregister

Ready to Participate?
Ready to Participate?
Get Started!
Log In

Avatar
Fibromyalgia....real or imagined?
I have read some reports that it is indeed a true verifiable disease, and I have read reports that suggest Fybromyalgia is what they call it for someone who has symptoms of various illnesses, but they can't find anything wrong with them. Can anyone clarify this for me?
asked in medical, diseases



seacommander answers:

I work in a hospital and there is a fibromyalgia clinic. This is indeed a verifiable condition about which little is known. I know somebody who suffers from the condition and I can assure you that the pain is not imagined and is very debilitating.

http://www.addenbrookes.org.uk/serv/clin/med/rheumatol.html

The following site will shed loads of information on the illness. It is estimated that between 1.3 to 7.3% of the population in the UK is affected. The pain comes from the connective tissues, such as the muscles, tendons, and ligaments. FMS does not involve the joints, as does rheumatoid arthritis and osteoarthritis.


http://www.ukfibromyalgia.com/
http://www.ukfibromyalgia.com/what-is-fm.html


/ reply

robinsamuels answers:

Fibromyalgia causes an increase in perceived pain in the body, with sufferers finding an increase of almost 50%, when assessed in blind studies.

http://www.ncbi.nlm.nih.gov/pubmed/2306288

It is roughly 7 times more likely in women than in men.

http://cat.inist.fr/?aModele=afficheN&cpsidt=3393805

Common symptoms are: diffuse musculoskeletal aches, pains or stiffness associated with tiredness, anxiety, poor sleep, headaches, irritable bowel syndrome, subjective swelling in the articular and periarticular areas and numbness.

http://www.ncbi.nlm.nih.gov/pubmed/6944796

This is a well known and studied illness. If you want to find out more, punch fibromyalgia into a google scholar search, and this will get rid of most of the useless dross that google normally drags up.


/ reply

sheps101 answers:

I am not sure if this counts as an answer, but I am diagnosed with CFS/Fibromyalgia so can confirm it is very real. I must admit it has taken some years to accept my diagnosis as I never believed in CFS and had never heard of Fibromyalgia, but have come to accept my symptoms all fit in.

The lack of knowledge and understanding of the illness has had me misdiagnosed with many different things over the years and put on many different mind altering drugs.

I can't help but wonder if it had all been picked up years ago if I would be well today, but the odds are due to the length of time it went misdiagnosed I will never fully recover, but I still hope this will not be the case as 30 is far to young an age to be wrote off for life, and that's what all the doctors have done, also leaving me the impression they expect me to get worse not better. Fingers crossed they are wrong :O)

It is a evil and cruel illness that effects every aspect of your life. I spend each day fatigued and in pain or is that in pain leading to fatigue (I can never be sure). I have not woke up feeling refreshed in so many years I don't even remember what it feels like to wake up feeling refreshed, just to wake without pain is the best I can hope for and the last time that happened I had to question my self if I was actually awake or even alive, it was such a surprise. I can not jump out of bed in the morning, it takes ages (hours sometimes) to get moving, and when I do I have to move carefully, due to pain and balance problems and also I have to limit the risk of pulling any muscles or them going into spasm.

I often describe it to other like living with the flu on a daily basis, but some days it is worse than this and somedays it is better.

Always having to live life on a balance is difficult as you can feel good one day but if you over do it you will pay for it the next day or even the day after and it can knock you off you feet for a week or more.

Simple things like climbing the stairs a couple of times can be just enough to over do it. Saying that there is not many days I can walk up the stairs at the end of a day as I am normally on all 4s.

Concentration is another thing it greatly affects, my attention span is really short, and it makes reading books or watching films really difficult, just talking can be bad enough when the brain fog sets in.

that is not to mention things like IBS, and the fact all my senses are all overly sensitive and I seam to have this ever growing list of sensitivities and allergies. Being overly sensitive to light, sound, smell, taste and touch really does create a whole other set of problems. There is also the problem of not being able to regulate my temperature properly so it is not uncommon to find me sat with my bottom half wrapped in blankets to keep my legs warm but at the same time wearing a t-shirt

I could go on and on as there is so many aspects to these illnesses and everyones experiences of it will be different, but at the end of the day it doesn't matter what they call it the illness is real all the same. Feel free to ask me if there is any aspect you wish to know more about :O)


/ reply

Comments


No Comments